So far, the evaluation seems to be progressing well.
My major goal to work towards right now is to (no judgement allowed) gain weight. Now, for you and for about 98% of my patients, this is an easy (and not always recommended) thing to do. However, for me, it is taking more and more calories/energy to breathe and (tail going between my legs) eating has not been my first priority with all the changes that are going on life right now. I have about 8 pounds to go to get back to my "normal weight" to my body can have "some reserves" for after surgery. As a Registered Dietitian, I know this is important, and I can tell you all day about high-calorie foods to eat, ways to add calories, snacking, supplements, counting calories, etc. But as the person with CF going through a transplant evaluation, recently stopped working, on oxygen, who gets exhausted going grocery shopping ... it is much easier said that done. I have known this for quite some time, going through periods like this throughout my life. I think living this disease has given me geunine empathy for people who face nutrition challenges in leiu of their disease(s). Although eating is a basic necessity of life, it is something easily controlled by the patient's mind and can go on the back burner when you have other things occupying your mind.
It is supposed to work like this: when a person is not hungry, they do not eat. However, for a good chunk of Americans ... this is not the case :-) For ill people, this IS the case and more. I may have a slight desire to eat, but I'm not sure WHAT I want to eat. Then I don't feel like getting up to prepare something to eat because it's too much effort and it's exhausting. Then I lay on the couch, watch TV, take medications, pet the dog (aka Will) and notice how happy he looks napping on the plushy couch. So then I probably fall asleep. Before I know it, it's 2:00 and I haven't done a darn thing, including eat anything of real substance. Sighs. That is just how it goes.
Soooo .... my sister-in-law Hillary sent me this website to help me out:
Great concept ... with recipes :-) Thanks, Hillary!
Below are a few more of our favorite, higher-calorie recipes. For 2 of our bridal showers, the guests were encouraged to complete a recipe card for us to start a recipe book collection. We have used some, and they have been delicious. So another big Thank You if you provided us a recipe at one of our showers :-)
Below are a few more of our favorite, higher-calorie recipes. For 2 of our bridal showers, the guests were encouraged to complete a recipe card for us to start a recipe book collection. We have used some, and they have been delicious. So another big Thank You if you provided us a recipe at one of our showers :-)
Sauteed Apples - we add these to waffles on the weekends. Not quite as good as the Cracker Barrel fried apples, but way cheaper.
Baked Apples and Pecan Pancake Bake - Yummy, sweet and easy. Justin and I like to eat breakfast foods.
** Confession, I prefer to cook my eggs with bacon grease. We have 2 jars of left over grease in our freezer. Bad, dietitian ... bad! **
** Confession, I prefer to cook my eggs with bacon grease. We have 2 jars of left over grease in our freezer. Bad, dietitian ... bad! **
Pioneer Woman - We have cooked a few of her recipes, and they have been easy and delicious. I also love her show on Food Network. Sometimes I feel full just watching her cook and eat on TV. Her recipes are very hearty, and not heart healthy. Thank goodness her kids are actively working on the ranch, or I'm sure they'd be eat up with childhood obesity (pun intended).
Shrimp and Grits - we add onions, peppers, diced Italian-seasoned tomatoes and sausage to our sauce. But very hearty, delicious and loaded with fat.
What are some of your favorite recipes??
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